Description

Exploring patient engagement practices and resources within a health care system: Applying a multi-phased mixed methods knowledge mobilization approach

Katharina Kovacs Burns, Mandy Bellows+, Carol Eigenseher+, Karen Jackson+, Jennifer Gallivan+ and Jennifer Rees+

University of Alberta, Edmonton, AB, Canada;

+Alberta Health Services, Calgary, AB, Canada

Abstract

A Canadian health authority developed a patient engagement framework, but had no standard resources or supports to prepare staff, leaders or patients/families for meaningful patient engagement. A study was conducted to determine what resources, preparation and supports were needed for patients, providers and leaders to be meaningfully engaged in patient-centred care decisions, and for the contents of a resource ‘kit.’ A multi-phased mixed methods approach included a needs assessment with patients, providers and leaders on what was essential for the patient engagement experience; a scoping literature review on appropriate resources; a patient engagement ‘Resource Kit’ based on findings; and a pilot and evaluation of the kit. This integrated approach resulted in a resource kit that was relevant in terms of content, comprehensive in the volume of resources, and tailored to the unique needs of patients/families, providers and leaders. Continuing evolution and evaluation of the kit was seen as critical.

Keywords: multi-phased study, mixed methods, multi-stakeholder, patient and family engagement, resource kit, pilot